I must truly say today that my cup runneth over. There are no other words to describe my feelings except for that.
It is officially 2 weeks ago today that Alex went into the hospital for his open heart surgery, to have his Fontan procedure. Saying that I'm happy to be on this side of it now is a HUGE understatement.
Alex's x-ray was much improved today. So much so that he was taken off of one of his diuretics, his other one is changed to twice a day and he can be without oxygen during the day. He will still wear it at night, but can be without his leash during the day. We will go back to see his cardiologist on October 24th and have another x-ray. We pray that there will not be any fluid build up between now and then. It's hard to guess which kids will have this fluid return and who won't, so it's just a watching game for now. They were very pleased with how good he looks, and gave him a big thumbs up! Way to go Alex!
I have been blessed with 2 amazing children. Sam, with understanding beyond his years, has been a rock throughout all of this. He never ceases to amaze me with his ablility to adapt and accept the changes and responsibilities of being a big brother to a sibling with health issues. This time has been just as hard on Sam as it has on Alex, just in different ways. Sometimes I think it's been harder on Sam, only because he understands more than Alex. During the time leading up to surgery, Sam had a lot of anxiety and worry and stress. He handled it like a champ and has been a huge support to Alex through all of it. Thank you Sam for being the good boy that you are, and for the continual example that you are to us.
Alex truly is our miracle boy. He has taught us so many lessons of faith, endurance, strength and love. He has been through so much physical pain and adjusting to limitations, even though most have been temporary, he still comes through with a smile on his face and a spring in his step. He has never let anything slow him down. He is our little energizer bunny, and days when I am ready to pull my hair out because I can't keep up with him, I will look back on this and count my many blessings.
My heart is overflowing with love and gratitude for all of you who have fasted and prayed for Alex and our family. I have to say again, that I know prayers are answered. We are never left alone. I'm grateful for the guardian angels who have never left his side. I am grateful for the many angels on this earth whom I am priviledged to know. We have the most amazing family, friends and ward! We would be lost without each of you. We have felt so much love from so many people. Your "small" acts of kindness are not that at all. They are huge. They are what gives us strength. The thought was brought up in church on Sunday that we need each other, we have been sent here to strengthen and support each other. I absolutely agree with that and am grateful to my Heavenly Father for sending you my way.
My thoughts are with one of the boys in our support group who had his Fontan the day after Alex. His name is Alex as well, and he is such a darling little boy. He has hit a bump on his road to recovery, and we continue to pray for him. We know that all will be well soon.
Thank you again! Have a great day!
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