Follow up appt.

I just realized that I hadn't been on the computer all day, and hadn't posted anything about Alex's appointment today. Sorry for those who have checked and found nothing!

He woke up SUPER grumpy today! He did not want to go to the hospital for his x-ray (can you blame him?). "I don't want to go for my x-ray right now." That was all we heard until we got out the door. Once we pulled into the parking garage at PCMC he perked right up and wanted to walk. "I want to walk in the hospital not ride in my stroller"..... well good for you, so he walked, and walked and walked. Even being a week post-op he seemed to have more stamina than before surgery. I'm afraid our stroller riding days are coming to an end soon. That kid has lived in his stroller when we go places. He has lots of energy but would wear out fast, then he would want held. He also would ride in it everytime we'd go grocery shopping, I have a thing with putting him in a shopping cart! :) It was really nice to see him go today and not poop out.

We saw Dr. Puchalski, and Annie, the Nurse Practitioner with surgery. They both said that his x-ray was "stable", meaning that there isn't any improvement or any worsening of fluid. There are not any pleural effusions (fluid around the lungs which causes them to not be able to expand with breathing), which is great! There is however fluid on his lungs that he needs to clear. They have left him on his Lasix (diruetic) 3 times a day, and added a second diuretic to help him try to clear that fluid out. With increased diuretic, movement and coughing he should be able to clear it out. His oxygen saturations are running in the low 90's with him still on 1/4 liter of oxygen.

Dr. Puchalski is thrilled with how he looks. He really is improving everyday. He has seemed to turn a corner today especially. He was super ornery this morning, but after lots of walking at the hospital, and a nap this afternoon he woke up as the happiest kid on earth. He was playing and laughing, like he has been, but didn't get grumpy this evening. I know that your prayers and faith are whats keeping him going.

I am amazed at the continued support and outpouring of love from all of those around us. Just when I think nobody can do more to help us, someone else shows up and does more. My heart is so full of gratitude for each of you and your kindness. Thank you!

I will post more later on this week and include pictures. Have a great night!