Gary was so sweet and let me sleep the whole night. It felt great to get 7 hours of sleep all in a row! Thank you Gary for letting me rest, even though today was your birthday and you should've been the one sleeping.
Today Alex didn't do a whole lot, which is perfect. We played with Mr. Potato Head, colored, watched t.v., watched more t.v., and he wanted outside so bad. Our backyard is sunny all day until about 6:00, so instead of playing out back, we went out front and blew bubbles and caught potato bugs in the shade. The backyard is torture for him anyway, all he wants to do is play on the swingset, play in the sandbox, jump on the trampoline and swing. We did give in and let him swing, just not how he normally swings. That's a little rough for a fresh sternal incision!
He is being really good about his oxygen. He is on a 150 foot leash and has learned to turn around and yank it when it gets stuck. It's amazing how adaptable kids are. I just feel bad when he's walking and all of the sudden gets pulled back. I can tell when it happens because I hear "UGH" and then see it get yanked. Funny kid.
His appetite is about back to "normal" and he is eating pretty much everything. During his hospital stay he lost just under a half of pound, which is outstanding! I am so glad that we don't have to make up much ground on his weight. Dr. Kaza (his surgeon) wanted to know what our secret was to him looking so healthy and putting on the weight that he had. When I told him it was force feeding, he laughed. After my family vouched for me, I think he believed it. I have spent SO many hours at the table with Alex, and saying SO many hours is an understatement. I literally feel like I spend the majority of my day feeding that kid. After hearing Dr. Kaza say that, it made all of those hours worth it!
We are grateful for the continued prayers that are offered in his behalf. Even though we are home, we are far from being back to normal. He still has a long road of recovery ahead of him. We are so happy to be doing it at home, in our own beds and own element. He will be restricted on his physical activity for the next 6 weeks, but I'm not sure I can keep him down that long! So thank you to those of you who are still praying. Those prayers are still needed and very much appreciated!
We are very aware of our Heavenly Father's hand in Alex's recovery. We know that He is watching over all. This little boy is a miracle. We are grateful for all of the miracles that we have witnessed and been able to be a part of. Prayers are answered, miracles still happen!
Our computer still isn't fixed, so I can't edit pictures. Here are some that we've taken over the last couple of days.
Walking out to the car to come home:
Taming his leash:
Getting outside and being silly:
Have a great night! We go in on Wednesday morning for his chest x-ray and quick check from the CardioThoracic Nurse Practitioner. I will update when we get the news from that. We continue to pray for no fluid around his lungs and continued speedy recovery.
2 comments:
I am so out of the loop. I haven't checked your blog in a while and was shocked to see that Alex just had his Fontan. I'm so glad it went as smoothly as it did. What a superstar. Many prayers for his continued recovery. We're taking Jack in for a sedated echo to see if it's time for his Fontan in a couple of weeks. Blah. I hope my kids is as brave as yours. :)
I am so glad you are doing so good, see you tomorrow in radiology! We miss seeing you around!
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